Update on Joan


Posted by: Chaya , Feb 29,2008,17:51  


Joans surgery was cancelled for March 4th as they have found yet another complication that would greatly reduce her chances of survival should they operate. The good news for the time being is Lymphoma seems to be ruled out as a diagnosis. The tumor can not be removed until they sort out the adrenal tumors and its possible connection to the mass in her neck. She is tiring easily and the fevers/sweats are getting old without any answers at present time. True to form she is a trooper and continues to be positive.
Tim continues to do well and has been able to start back to school part time. He still battles nausea now and again but knock on wood he continues to remain stable as Joans health needs are addressed.


Replies:
Multiple endocrine neoplasia?

Re : Update on Joan --- Chaya
Posted by: Margaret , Feb 29,2008,22:33 Top of Thread


Look, I'm guessing out of left field here, but I think I remember you mentioning that Joan had both thyroid and adrenal gland problems, which makes me think of Type 2 multiple endocrine neoplasia (MEN). I'm also not sure of Tim's history, just remembering that he's been having a really hard time and a lot of nausea. There is a condition called Zollinger-Ellison syndrome that is associated with Type 1 MEN that has a lot of Crohn's-like symptoms. If anything about Tim's case of Crohn's is been atypical, and Joan does happen to have Type 2 MEN, it might be worth asking Tim's GI to make sure to rule out Zollinger-Ellison.

Sorry, I'm sure Joan really doesn't need armchair (non)doctors butting in, it's just that there seems to be some uncertainty about the diagnosis, and you never know what might be helpful. Best wishes to her and to you.

Re: Update on Joan

Re : Update on Joan --- Chaya
Posted by: Virgie , Feb 29,2008,22:18 Top of Thread


Thanks for the update. I have been wishing that things were going better.

Keeping them all in my thoughts and prayers.

Hang in there Joan!!

Love to all.
Virgie

Re: Update on Joan

Re : Update on Joan --- Chaya
Posted by: MaryS , Feb 29,2008,22:14 Top of Thread


Chaya,

Thanks so much for the update. Am keeping Joan and Family in my prayers.

MaryS (Nicole, 25, dxd Crohns/Colitis, age 17, Remicade double, Imuran/Asacol)