Charcot Leyden Crystals???


Posted by: Kaitlynsmom , Dec 06,2011,11:52  


Hi all, it's been awhile.....

We ran a parasite stool test through
http://www.parasitetesting.com/_private/J.%20Bacte%20&%20Parasit.-pathogenic%20bacteria.pdf
for our daughter and it came back that she has the byproduct of parasites, Charcot-Leyden Crystals. Crazy.

Anyone else have these crystals in their stool?

We are going to begin a cleanse soon......fingers crossed....

-Kaitlyn's Mom

Replies:
Re: Charcot Leyden Crystals???

Re : Charcot Leyden Crystals??? --- Kaitlynsmom
Posted by: Razzle , Dec 06,2011,19:21 Top of Thread


Charcot Leyden Crystals are breakdown products of eosinophils (a type of white blood cell), which are known to be elevated in stool as a result of intestinal Parasites, Crohn's, Celiac, Eosinophilic Gastroenteritis, some other autoimmune & connective tissue disorders (Churg-Strauss, Hyper-Eosinophilic Syndrome, Behcet's, Lupus, etc.), and some rare metabolic/mitochondrial disorders. I also suspect candida overgrowth could cause C-L crystals in stool, because some fungal infections are known to trigger eosinophilic inflammation.

I hope the parasite cleanse takes care of the problem...take care,

-Razzle
Adult w/ ?CD, Allergies, persistant Borrelia infection, etc.


Re: Re: Charcot Leyden Crystals???

Re : Re: Charcot Leyden Crystals??? --- Razzle
Posted by: Kaitlynsmom , Dec 06,2011,20:46 Top of Thread


Hi Razzle,

How are U?

We must have been typing at the same time?

Can you believe it, it's LYME!!! Dr. called at 8:00P.M. knew something "big" was up...

Guess we will be "seeing" you more now on Lyme.net.

When will this nightmare ever end.......

Hope you are doing well.

I'll be sending back the parasite clean and starting up the doxy.

-Kaitlyn's Mom

Re: Re: Re: Charcot Leyden Crystals???

Re : Re: Re: Charcot Leyden Crystals??? --- Kaitlynsmom
Posted by: Razzle , Dec 07,2011,00:17 Top of Thread


Not surprised at all that Lyme could present like IBD. Mine did.

You may want to keep the parasite cleanse. Many with Lyme find the anti-parasitic stuff actually helps them with the Lyme stuff too. Whether that's because Lyme has some parasite-like properties, or whether that's because of parasitic co-infections (such as Babesiosis, Filiarial worms, etc.), nobody knows for certain. Parasite testing in the US is deplorably inaccurate (i.e., a negative test does not rule out parasites).

"See" you on LymeNet, !!! Or the other place I hang out is on HealingWell...

Take care,

-Razzle

Re: Re: Re: Re: Charcot Leyden Crystals???

Re : Re: Re: Re: Charcot Leyden Crystals??? --- Razzle
Posted by: Kaitlynsmom , Dec 07,2011,07:54 Top of Thread


Yes Razzle, I think I will be keeping the cleanse! Maybe Kaitlyn and I will do it together....

I cried when her CD-57 came back at 20. I just knew it was Lyme.

Some of the bands that were positive 5 years ago on her western blot (through IGeneX) are still positive on the LabCorp WB, along with more bands giving a Positive result NOW. 5 years of negative, crappy tests until now.......

For anyone out there in cyberland reading this and interested in testing, I recommend the following test only to be performed at LabCorp:

#505026 and is named HNK1 (CD57) Panel

and, of course, the Western Blot

ELISA is pretty useless!

This test was my clue to re-test for Lyme. Not many other things will give a low CD-57 besides chronic Lyme. If the LabCorp WB was negative again this time, I was going to use the newest test from Advanced Labs in PA that came out about a month ago. Don't have to do that now....

http://heallyme.wordpress.com/2009/01/28/understanding-the-cd-57-test/

Don't know what to expect while beginning treatment. Dr. (LLMD) said it could get worse before getting better.....

Best,
-Kaitlyn's Mom (fighting Lyme for about 2 years)
-Kaitlyn, age 13
CD/UC 1/07
SCD 9/07
LDN 3/10 on-off
Lyme dx. 12/11
Set to begin Doxy tonight



Re: Charcot Leyden Crystals???

Re : Charcot Leyden Crystals??? --- Kaitlynsmom
Posted by: Kaitlynsmom , Dec 06,2011,11:58 Top of Thread


Ops...here is the site:

http://www.parasitetesting.com/index.cfm

Re: Re: Charcot Leyden Crystals???

Re : Re: Charcot Leyden Crystals??? --- Kaitlynsmom
Posted by: Kaitlynsmom , Dec 06,2011,20:42 Top of Thread


OMG...doctor just called.

IT'S LYME, finally a diagnosis, finally a positive test and believe it or not it was the LapCorp WB. We have done that one several times since she got sick in 07 and they were always negative. IGenex back then had several positive bands but overall negative. I guess I had the test done too soon back then.

I can't believe it.

Lyme specialist said it may turn out that her CD/UC was Lyme all along......

-Kim